Work

A pilot qualitative study of narrative medicine: Adapting parallel chart into neurodevelopmental disorders, a tool attempting to enhance engagement

Year: 2025

Type: article

Abstract: AIM: The study aims to introduce a Parallel Chart, a tool of Narrative Medicine, for patients with Neurodevelopmental Disorder (NDD) by evaluating its clinical application in improving engagement. METHODS: A two-steps qualitative study was conducted. In Phase-A, healthcare professionals' opinions about a semi-structured Parallel Chart adapted to NDD settings were collected through a focus group and written interviews, in order to guide a tool's reworking. In Phase-B, participants (n = 33) with at least one year' work experience in paediatric rehabilitation, applied the Parallel Chart to NDDs within 6-12 months, evaluating the usability of the tool and providing experiences in a second focus group. Cases described were complex NDDs with disabilities assessed by institutions, attending rehabilitation at least once a week, in two different kinds of treatments. Data were analysed using Braun & Clarke's (2006) interpretative thematic approach. RESULTS: Parallel Charts were written by professionals. The macro-themes emerged in Phase-A were: Parallel Charts (I) and healthcare professionals and (II) work context. The macro-themes emerged in Phase-B were: (I) assumptions and (II) effects of the writing process. DISCUSSION: Parallel Chart, improves professionals' ability to process emotions, reorganize cognitive thoughts, support engagement in care pathway, despite the need for a longer writing time.

Source: Research in Developmental Disabilities

DOI: 10.1016/j.ridd.2025.105195