Work

Stigma and community responses among individuals recovered from COVID-19 in India

Year: 2025

Type: article

Abstract: Stigma is a recurring challenge in epidemics, undermining disclosure, testing, and reintegration. During COVID-19 in India, little is known about how community perceptions translated into recovered participant´s experiences of stigma. A multicentric qualitative study was conducted (September 2020–January 2021) across 18 districts in 7 Indian states. In depth telephone interviews were undertaken with 223 participants (136 community members, 87 recovered individuals). Data were analysed thematically using Braun and Clarke’s framework, with NVivo-assisted coding, reflexive journaling, and saturation checks to ensure rigour. Six major-themes were identified: fear and moralisation, institutional labelling, structural inequalities, economic and psychological harms, stigma within health-care interactions, and coping. Community fears of contagion and visible labelling (stickers, barricades, police visits) legitimised gossip and blame, which recovered participant´s described as persistent rejection, job loss, shop boycotts, and psychological distress. Stigma disproportionately affected informal workers, poorer households, and Muslim minorities, which was further fuelled by media portrayals. Coping relied on family support, while community members highlighted the role of health workers and positive media narratives in stigma reduction. Stigma during COVID-19 in India was socially produced and sustained by fear, institutional measures, and social hierarchies. These dynamics directly translated into recovered participant´s lived experiences, undermining both equity and epidemic control. Addressing stigma is therefore central to pandemic preparedness. Risk communication should avoid fear-based messaging, institutional protocols must protect confidentiality, and psychosocial support and equity monitoring should be embedded into preparedness frameworks. What is already known on this topic Stigma is a recurring challenge in epidemics, documented in HIV, TB, and Ebola. Early reports from COVID-19 highlighted stigma against health-care workers, but less is known about community and recovered participant´s experiences. What this study adds First multicentric Indian study to capture both community perceptions and recovered participant´s experiences of COVID-19 stigma. Demonstrates how fear and institutional labelling directly translated into exclusion beyond recovery, economic loss, and psychological distress. How this study might affect research, practice or policy Shows stigma is a structural determinant of epidemic response. Provides evidence for embedding stigma-sensitive communication, equity monitoring, and psychosocial support into preparedness frameworks.

Source: Discover Public Health

DOI: 10.1186/s12982-025-01288-w