Work

Moral Distress Among Family Caregivers: A Concept Analysis

Year: 2026

Type: article

Abstract: AIM: To examine and define the concept of moral distress among family caregivers by identifying its key attributes, antecedents and consequences. DESIGN: Concept analysis. METHODS: This study was guided by Walker and Avant's concept analysis framework. A comprehensive literature search was conducted to identify relevant studies, with 12 articles included in this analysis. DATA SOURCES: PubMed, CINAHL, Scopus and PsycINFO databases were searched for articles published between February 2000 and May 2025. RESULTS: Three defining attributes of moral distress in family caregivers were identified: self-directed negative emotions, internal conflict and feelings of powerlessness and helplessness. Antecedents included caregiving burden, role conflict, ethical dilemmas, complex decision-making and internal and external constraints. Consequences encompassed long-term health effects, social withdrawal, burnout and moral residue. These findings led to a conceptual definition of moral distress in family caregivers. CONCLUSION: Moral distress in family caregivers is a significant and underrecognised issue that affects caregiver well-being and the quality of care they provide. This concept analysis offers a clear conceptual definition, providing a foundation for developing research instruments and interventions. IMPLICATIONS FOR THE PROFESSION AND/OR PATIENT CARE: Healthcare professionals should recognise moral distress in family caregivers as a key factor impacting both caregiver well-being and patient care. Support through education, counselling and peer groups can reduce moral distress and foster more ethical, collaborative care environments. IMPACT: This study addressed the lack of clarity surrounding moral distress in family caregivers. It identified key attributes, antecedents, and consequences, and developed a clear conceptual definition. These insights will inform research, practice and policy. The findings will benefit caregivers, improve patient care and support healthcare teams. REPORTING METHOD: This study followed Walker and Avant's framework and employed the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines in article selection. PATIENT OR PUBLIC CONTRIBUTION: No patient or public involvement.

Source: Journal of Advanced Nursing

DOI: 10.1111/jan.70444

Authors: Tharaa Ananzeh, Caroline F. Morrison, Elaine L. Miller, Natalie Kreitzer, Tamilyn Bakas

Institution: University of Cincinnati

Language: English

Topic: Ethics in medical practice

Subfield: General Health Professions

Field: Health Professions

Domain: Health Sciences

SDG: Good health and well-being

Open Access status: hybrid

Estimated APC paid: $5,450