Drawing cancer chronicles: A qualitative study to evaluate narrative meaning-making over time and in response to a meaning-centred care intervention
Year: 2026
Type: article
Abstract: The diagnosis of incurable cancer can disrupt life stories, undermining meaning-making and challenging self-identity. People may therefore need to search for and create new stories about their lives that incorporate their diagnosis. Arts-based narrative interventions are being explored to support this existential process of narrative meaning-making. However, developing effective existential support may be limited by the lack of methods capable of investigating their impact. This study is the first to explore narrative meaning-making across time and a meaning-centred care intervention by longitudinally using 'Rich Pictures' (RPs) - hand-drawn visual narratives. We analysed repeated RPs about living with incurable cancer from thirty-eight participants in two studies: one incorporating an arts-based narrative intervention, and one without. RPs were compared across time and the two groups using an inductive, multi-level, and participatory analysis approach. Our findings highlighted six strategies variably used by participants to reconstruct their narratives over time: repeating, retaining, repurposing, reinforcing, reducing, and reassembling. Differences were found in the employment of these strategies between the two different studies, with arts-based intervention participants predominantly developing new ways of narrating and relating to cancer as a disruptive life event. We conclude that people living with incurable cancer employ a range of strategies in reconstructing their narratives. Arts-based interventions may support this existential process. The repeated use of RPs is a valuable method for investigating narrative meaning-making over time, across groups, and interventions, offering insights to evaluate and develop meaning-centred care in oncology.
Source: PLoS ONE
Authors: Emily R.E. Evans, Niels van Poecke, Maite Portela, Michael Scherer-Rath, Yvonne Weeseman, Zarah M. Bood, Nirav Christophe, Henny Dörr, Judith de Vos-Geelen, Aart Beeker, Gerty de Klerk, Eric Bras, Hugo Vlug, Frans Bossink, Frans Savelkoul, Liesbeth M. Timmermans, Mirjam A.G. Sprangers, Esther Helmich, Hanneke W.M. van Laarhoven
Institutions: Amsterdam University Medical Centers, Cancer Center Amsterdam, University of Amsterdam, Radboud University Nijmegen, iHub, University of the Arts Utrecht, Maastricht University Medical Centre, Maastricht University, Spaarne Ziekenhuis, Spaarne Gasthuis, Amsterdam UMC Location Vrije Universiteit Amsterdam, Amsterdam UMC Location University of Amsterdam, Radboud University Medical Center
Language: English
Subfield: Conservation
Field: Arts and Humanities
Domain: Social Sciences
Open Access status: gold
Estimated APC paid: $2,382
Funder: KWF Kankerbestrijding
OpenAlex ID: W7124910238
