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A Scoping Review of Photo-Based Approaches to Understand the Lived Experience of Children with Medical Complexity, Their Family Caregivers, and Clinicians

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Year: 2026
Type: article
Study design: Systematic Review
Source: Journal of Palliative Medicine
DOI: 10.1177/10966218251413034
Authors: Nell E. Baumgarten, Danielle Faye Jonas, Ellie Oslin, Elsa Ayala, Crystal Nogle, Ari Pollack, Ali Mendelson, Jori Bogetz
Institutions: University of Washington, New York University, Seattle Children's Research Institute, Treuman Katz Center for Pediatric Bioethics and Palliative Care, Seattle Children's Hospital, Kaiser Permanente
Language: English

Topic: Participatory Visual Research Methods
Subfield: Sociology and Political Science
Field: Social Sciences
Domain: Social Sciences
SDG: Good health and well-being

Open Access status: closed

Funder: National Institutes of Health
Award: A Novel Photo-Narrative Communication Intervention Among Parents of Children with Severe Neurological Impairment in the ICU
OpenAlex ID: W7128368537
FWCI:
Cites: 58
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