Work

Seizures in children with Dravet syndrome in extreme heat: A qualitative study of parental perspectives

Year: 2026

Type: article

Abstract: AIM: To describe parental perspectives on how heatwaves and high ambient temperatures influence seizure activity in children and adolescents with Dravet syndrome and to examine coping strategies families employ. METHOD: A descriptive qualitative study was conducted using purposeful, non-probabilistic sampling. Nineteen parents of children and adolescents with Dravet syndrome were interviewed in-depth. Inductive thematic analysis was performed using MAXQDA software. RESULTS: Three themes emerged: (1) seizure worsening with high ambient temperatures; (2) additional temperature-related triggers; and (3) parental coping strategies. Parents reported that heatwaves and high temperatures increased seizure frequency, intensity, and duration. Abrupt temperature shifts and water exposure (e.g. swimming) were cited as additional triggers. Parents used thermoregulatory measures-light clothing, cool indoor environments, restricted outdoor activity-and empirical antipyretic use to mitigate seizure risk. INTERPRETATION: This research highlights the aggravating role of heatwaves and how parents implement thermoregulation strategies. These findings inform clinical guidance for managing Dravet syndrome during extreme heat, and emphasize the need for further research into the prevention of heat-related seizures.

Source: Developmental Medicine & Child Neurology

DOI: 10.1111/dmcn.70162