Routine collection of patient-reported outcomes in HIV clinics: lessons learned after more than 130 000 assessments have been completed
Year: 2026
Type: article
Study design: Observational Study
Abstract: OBJECTIVE: Patient-reported outcomes (PROs) provide important information to improve healthcare and facilitate research but can be difficult to implement in busy care settings. DESIGN: We integrated PRO collection into HIV care (2008-2024) with results summarized for providers to improve clinical care. METHODS: PWH presenting for HIV care at nine clinics across the United States in the CFAR Network of Integrated Clinical Systems (CNICS) were asked to complete a touch-screen-based PRO assessment at routine clinic visits using a web-based application. RESULTS: 21 725 PWH completed the CNICS clinical PRO assessment 132 240 times (mean 6.1 assessments per PWH). Mean age at initial assessment was 43.8 years, 24.9% screened in for depression, 35.5% reported heavy episodic (binge) drinking, 38.9% smoking, 10.9% methamphetamine use, 11.7% recent intimate partner violence, and 8.4% reported unstable housing in the prior 30 days. DISCUSSION: We implemented a PRO assessment into HIV care at nine geographically dispersed clinics. PRO responses in domains known to drive adverse outcomes such as substance use were identified as were situational concerns such as unstable housing. This study demonstrated that use of a well designed PRO platform can address many of the barriers of paper and interview-based collection and be sustainable over time even as clinic flow and content priorities evolve. It demonstrated that PROs done for clinical care are useful to address clinically relevant research questions and institutional needs. Finally, this study demonstrated the feasibility of wide-spread implementation of a clinical PRO assessment into busy HIV clinical care settings with >130 000 assessments completed to date.
Source: AIDS
Authors: Heidi M. Crane, Mindy Dai, Rob Fredericksen, Lydia N. Drumright, Kenneth H. Mayer, Julie G. Fleming, Edward R. Cachay, Laura Bamford, Katerina Christopoulos, Valeria Botero, Steven A. Safren, Allan E. Rodriguez, George Yendewa, Brooke Willis, Kimberly Han, Sydney LeBlanc, Richard D. Moore, Jeanne C. Keruly, Geetanjali Chander, Sonia Napravnik, Allison Webel, Amanda L. Willig, D. Scott Batey, Greer Burkholder, Sonya L. Heath, Justin R. McReynolds, L. Sarah Mixson, Bridget M. Whitney, Robin M. Nance, Michael S. Saag, Mari M. Kitahata, J.A.C. Delaney, William B. Lober
Institutions: University of Washington, Fenway Health, UC San Diego Health System, University of California San Diego, University of California, San Francisco, University of Miami, Case Western Reserve University, Johns Hopkins University, University of North Carolina at Chapel Hill, University of Alabama, University of Alabama at Birmingham, UAB Medicine, Tulane University
Language: English
Subfield: Infectious Diseases
Field: Medicine
Domain: Health Sciences
Open Access status: green
Awards: Genes, substance use, and HIV outcomes in people living with HIV across the US, Developing Research At The Interface Of HIV And Aging, University of Washington/Fred Hutch Center for AIDS Research, CFAR Network of Integrated Clinical Systems (CNICS), Alcohol Research Consortium in HIV: Ending the HIV Epidemic through interventions and Epidemiology at the intersection of the alcohol and HIV care Continua, AIDS and Aging Research Platform (AARP), The University of North Carolina Center for AIDS Research, Comorbidities and other consequences at the intersection of the HIV and substance use epidemics, UAB Center for AIDS Research (CFAR)
OpenAlex ID: W7131106929