Work

A Federal Policy and Legal Framework to Help Address Health Disparities Experienced by People with Intellectual and Other Cognitive Disabilities: Clinical Research and Supported Decision-Making

Year: 2026

Type: article

Abstract: People with intellectual and other cognitive disabilities often face barriers to participating in clinical research, particularly related to the informed consent process. Recent federal policy and legal efforts have advanced strategies to address these challenges, including using supported decision-making. This article discusses this recent progress and the risks and potential opportunities to continuing it in a shifting federal landscape.

Source: The Journal of Law Medicine & Ethics

DOI: 10.1017/jme.2025.10201

Author: Alison Barkoff

Institution: George Washington University

Language: English

Topic: Ethics in Clinical Research

Subfield: Public Health, Environmental and Occupational Health

Field: Medicine

Domain: Health Sciences

SDGs: Good health and well-being, Reduced inequalities, Peace, justice, and strong institutions

Open Access status: hybrid

Estimated APC paid: $3,550