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Identifying strategies to characterize the diversity of the MS population in Canada: a nominal group study

Year: 2026
Type: article
Abstract: Background: Diversity of the multiple sclerosis (MS) population in Canada is unknown, yet demographic and diversity-related characteristics influence health outcomes. Objective: To determine "What strategy would best address the information gaps regarding diversity of the MS population in Canada?" Methods: The virtual nominal group technique involved silent idea generation, recording and discussion of items, preliminary voting, discussion and final ranking. Results: Eight participants proposed 10 strategies; two were dropped before final voting, after which the top options (tied) were: a national standardized clinic form, novel applications of administrative data, and novel data linkages. Conclusion: We identified strategies to characterize the diversity of the MS population in Canada.
DOI: 10.3389/fneur.2026.1757659
Authors: Ruth Ann Marrie, Afolasade Fakolade, Colleen J. Maxwell, Dalia L. Rotstein, Helen Tremlett, E. Ann Yeh, Marcia Finlayson
Institutions: Dalhousie University, Nova Scotia Health Authority, Queen's University, University of Waterloo, St. Michael's Hospital, University of Toronto, St Michael’s Hospital, University of British Columbia, Djavad Mowafaghian Centre for Brain Health, Hospital for Sick Children
Language: English
Field: Medicine
Open Access status: gold
Estimated APC paid: $3,801
OpenAlex ID: W7143778996
FWCI:
Cites: 25
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