Provider and patient perspectives on the diagnosis and treatment of Alzheimer's disease: A global perspective from the Global Alzheimer's Leadership Series (GoALS)
Year: 2026
Type: article
Abstract: Since 2016, the Alzheimer's Association and the Fondation Alzheimer have hosted Global Alzheimer's Leadership Series (GoALS) global think tanks, with world-leading experts for innovative discussions to advance Alzheimer's disease (AD) research and care. The second GoALS think tank, held in June 2024 in Paris, focused on the relationship between biological changes and clinical manifestations of AD in the context of the evolving therapeutic landscape. Discussions spanned real-world experiences of providers, patients, and their families, theoretical considerations, and health system challenges. The lived experience perspective was central to these discussions. The importance of shared decision-making, clear and transparent communication, and the need for real-world data to holistically support patients during their experiences were highlighted. This manuscript shares key insights from both the think tank meeting in Paris and a featured research session at the 2024 Alzheimer's Association International Conference that expanded the discussion themes for broader dissemination with the community.
Source: Alzheimer s & Dementia
DOI: 10.1002/alz.71536
Authors: Philippe Amouyel, Sandrine Andrieu, Angela Bradshaw, Ralph C. Carmona, Magali Dumont, Lea Tenenholz Grinberg, Takeshi Iwatsubo, Oskar Hansson, Clifford R Jack Jr, Gregory A Jicha, Simin Mahinrad, Eric McDade, Catherine J Mummery, Ronald C Petersen, Shelagh Robinson, Julie A. Schneider, Lenny Shellcross, Amanda G Smith, Heather M. Snyder, Beth Tapply, Charlotte Teunissen, Wiesje M. van der Flier, Bruno Vellas, David Wallon, Jeff D Williamson, Donna Wilcock, Maria C. Carrillo
Institutions: Inserm, Université de Lille, Institut Pasteur de Lille, Fondation Alzheimer, LabEx DISTALZ, Centre Hospitalier Universitaire de Toulouse, Université de Toulouse, Centre d'Epidémiologie et de Recherche en santé des POPulations de Toulouse, Alzheimer Europe, Southern Maine Community College, University of California System, Universidade de São Paulo, University of California, San Francisco, The University of Tokyo, Lund University, Mayo Clinic, University of Kentucky, Alzheimer's Association, Washington University in St. Louis, UCL Queen Square Institute of Neurology, University College London, Rush University Medical Center, Rush University, World Dementia Council, University of South Florida, USF Health Byrd Alzheimer's Institute, Amsterdam Neuroscience, Amsterdam University Medical Centers, Vrije Universiteit Amsterdam, Amsterdam UMC Location Vrije Universiteit Amsterdam, Université de Rouen Normandie, Wake Forest University Health Sciences, Wake Forest University, Indiana University School of Medicine, Indiana University – Purdue University Indianapolis
Language: English
Subfield: Psychiatry and Mental health
Field: Medicine
Domain: Health Sciences
Open Access status: hybrid
Estimated APC paid: $4,200
Funder: National Institute on Aging
OpenAlex ID: W7164803850