A multi‑country evaluation of healthcare professionals’ experiences with the PanCareFollowUp training package to implement person-centred care in childhood cancer survivorship care: A PanCareFollowUp study
Year: 2026
Type: article
Abstract: PURPOSE: Survivors of childhood, adolescent, and young adult (CAYA) cancer face lifelong risks of treatment-related late effects, emphasizing the need for innovative, person-centred survivorship care. The PanCareFollowUp (PCFU) Care intervention, based on person-centred care (PCC), prioritizes survivors' values and needs. This paper describes the evaluation of experiences of healthcare professionals' (HCPs) and supporting staff's experiences with the training package that was developed for implementation of PCC in the PCFU Care. METHODS: To support PCC delivery, a training package, including a training presentation with voice-over and a workshop, was developed. Healthcare professionals (HCPs) and supporting staff from four European survivorship clinics evaluated the training package through questionnaires measuring readiness to apply PCC, knowledge, confidence, perceived utility, and tool-related experiences. RESULTS: Eighteen HCPs evaluated the training presentation. Readiness to apply PCC increased from 68% pre-training to 89% post-training, while confidence declined from 78% to 68%. Most participants reported improved knowledge, with 94% indicating at least some increase. Frameworks such as Ekman's pillars, the seven steps for a PCC consultation, and shared decision-making questions were rated highly useful. Twenty-eight HCPs evaluated the workshop; 82% found it useful and 82% reported an overall favourable impression. Participants valued open discussion, multidisciplinary perspectives, and survivor involvement. The workshop's short duration and more broadly, limited time, staff shortages, and digital infrastructure were identified as barriers to PCC implementation. CONCLUSION: This multi-country evaluation shows that even brief PCC training can enhance HCPs' readiness to deliver person-centred survivorship care. The findings highlight both the potential of concise educational interventions and the importance of delivery format and organizational context for the sustainable implementation of PCC across survivorship care settings.
Source: Supportive Care in Cancer
Authors: Jacqueline J. Loonen, Eline Bouwman, Adriaan Penson, Cecilia Follin, Anne Uyttebroeck, Dionne Breij, Katerina Kepakova, Sofie Prikken, Lars Hjorth, Jeanette F. Winther, Helena J. H. van der Pal, Carina Schneider, Anita Kienesberger, Hannah Gsell, Gisela Michel, Saskia M. F. Pluijm, Roderick Skinner, Leontien C. M. Kremer, Monica Muraca, Tomas Kepak, Rosella P. M. G. Hermens
Institutions: Radboud University Nijmegen, Radboud University Medical Center, Lund University, Skåne University Hospital, Universitair Ziekenhuis Leuven, KU Leuven, Masaryk University, International Clinical Research Center, St. Anne's University Hospital Brno, St. Anne's University Hospital Brno, Aarhus University, Aarhus University Hospital, Danish Cancer Society, Princess Máxima Center, University of Lucerne, Great North Children's Hospital, Utrecht University, University Medical Center Utrecht, Emma Kinderziekenhuis, Amsterdam University Medical Centers, Istituto Giannina Gaslini
Language: English
Field: Medicine
Domain: Health Sciences
Open Access status: hybrid
Estimated APC paid: $4,690
Funder: European Commission
OpenAlex ID: W7166571655