Données autorapportées sur la santé et l’expérience de soins des personnes vivant avec un ulcère des pieds diabétiques au sein d’établissements de santé de la Mauricie-Centre-du-Québec
Year: 2026
Type: dissertation
Study design: Observational Study
Abstract: Background: Patient-reported data are recognized as essential indicators for supporting a person-centred approach to care.However, the tools used to collect these data, namely Patient-Reported Outcome Measures (PROMs) and Patient-Reported Experience Measures (PREMs), remain underused in healthcare settings in Québec (Canada), particularly within the Centre intégré universitaire de santé et de services sociaux de la Mauricie-et-du-Centre-du-Québec (CIUSSS MCQ).This situation is also observed across several areas of healthcare, including diabetes care.Yet diabetes is a highly prevalent chronic disease that requires high-quality, continuous care tailored to patients' needs, especially in the context of diabetic complications.For example, despite the significant impact of the diabetic foot ulcer (DFU) on quality of life, knowledge regarding the use of PROMs and PREMs in this context remains limited.Objective: The primary objective of this master's project is to present two types of patient-reported data: those related to perceived health outcomes in terms of quality of life (PROs) and those related to the care experience (PREs) of individuals receiving care for DFUs within the CIUSSS MCQ.The project also aims to identify similarities and differences between PREs from a clinical setting within the Centre intégré de santé et de services sociaux de Chaudière-Appalaches (CISSS CA), which has a dedicated interdisciplinary team for lower limb amputation prevention, and those from the CIUSSS MCQ, which does not.Ultimately, it seeks to demonstrate the clinical relevance of using these tools in the context of DFU care within the CIUSSS MCQ.viii Method: An exploratory pilot study was conducted with a sample of 20 individuals who were receiving or had previously received treatment for a DFU at CIUSSS MCQ.The project adopted a patient-oriented research approach, including the involvement of a patient partner in the development of the research question and objectives, in the selection and development of the questionnaire, and in the implementation of data collection.Selfreported data were collected using the validated short French version of the Diabetic Foot Ulcer Scale PROMs, which assesses health-related quality of life across six domains (leisure activities, physical health, dependence/daily activities, negative emotions, worried about DFUs/feet, and bothered by ulcer care), rated on a five-point Likert scale, and the Quality from the Patient's Perspective PREMs, which measures quality-of-care experience across four dimensions (medico-technical competence, identity-oriented approach, socio-cultural atmosphere, and physico-technical condition).These PREMs assesses perceived care (PR) and the subjective importance (SI) of a given aspect of care using a four-point Likert scale.These data were then compared using t-tests and subsequently set in parallel with those obtained at CISSS CA.The analyses included descriptive and comparative statistics, with a statistical significance threshold set at p < 0.05.Given the sample size, the results were interpreted as trends.Results: Within the sample, the health-related quality of life domains most affected by DFU were concerns about DFUs (57.5%) and the burden associated with DFU care (70.75%).These findings are consistent with those reported in the scientific literature for this PROM.Regarding the PREMs, participants in the CIUSSS MCQ sample reported ix satisfaction with the quality of care received, with scores ranging from 3.21 to 3.75 out of 4.However, when these results are placed in perspective with those from a setting with a dedicated interdisciplinary team, our sample shows lower mean scores across all four dimensions (ranging from 3.85 to 4 out of 4).This trend supports the added value of interdisciplinary care in enhancing the patient care experience.Conclusion: Individuals treated for DFUs generally reported good health-related quality of life and a favourable quality-of-care received, even in the absence of structured and integrated care pathways involving an interdisciplinary team for DFU management.Nevertheless, the results suggest that an interdisciplinary model could improve the care experience at CIUSSS MCQ.Overall, the findings highlight the relevance of the questionnaires and the importance of assessing health-related quality of life and perceived experience of quality-of-care to guide improvements toward optimized, person-centred DFU management.
Author: Allard, Jany-Ève
Language: French
Subfield: Endocrinology, Diabetes and Metabolism
Field: Medicine
Domain: Health Sciences
Open Access status: green
OpenAlex ID: W7167993463