Content validity of the quality of dying and death questionnaire- revised global-version in North American inpatient hospices
Year: 2026
Type: article
Abstract: CONTEXT: Enhancing end-of-life care requires valid measurement of the quality of dying and death, but existing measures of this outcome have limited applicability across varied cultural and resource settings. To address this gap, we revised the Quality of Dying and Death Questionnaire (QODD) to create the QODD-Revised Global Version (QODD-RGV). OBJECTIVES: Our objective was to conduct a preliminary evaluation of the content validity of the QODD-RGV questionnaire in North American inpatient hospice settings based on item relevance, comprehensibility, and comprehensiveness. METHODS: Bereaved caregivers of patients who died in inpatient hospices in Canada and the United States were recruited 4-6 months after death of the patient. Participants completed the QODD-RGV, a 26-item measure assessing the experience of patients in the last week of life regarding symptoms, care preferences, and social support. Cognitive interviews were conducted with verbal probing and think-aloud techniques to evaluate the participants' understanding of the items and the information they relied upon to make their ratings. Interview transcripts were coded independently by two team members followed by consensus coding. Qualitative content analysis was performed. RESULTS: Eighteen cognitive interview protocols were completed. Participants indicated that their ratings were most commonly based on information from the perspective of the patient or themselves. The most common judgment strategy was comparison to "a hoped for or ideal dying experience," followed by "a state of distress/no distress." All respondents used multiple standards of comparison. Response difficulty was most frequently due to lack of communication with the patient. No single item was consistently misunderstood, but there was uncertainty about the ratings of some items due to limited caregiver knowledge or time spent communicating with the patient. CONCLUSION: The present study with bereaved caregivers in North American inpatient hospice settings provides preliminary evidence supporting the content validity of the QODD-RGV in North American hospice settings based on relevance, comprehensibility, and comprehensiveness of the items.
Source: PLoS ONE
Language: English
Field: Medicine
Domain: Health Sciences
Open Access status: gold
Estimated APC paid: $2,382
Funders: Sanford Burnham Prebys, Health Bureau, American Cancer Society, U.S. Department of Veterans Affairs, Bill and Melinda Gates Foundation, Russell Sage Foundation, American Heart Association, Damon Runyon Cancer Research Foundation, Dysautonomia Foundation, Glenn Foundation for Medical Research, Cancer Prevention and Research Institute of Texas, Lustgarten Foundation, United States - Israel Binational Science Foundation, Naito Foundation, Takeda Science Foundation, Nakatomi Foundation, Uehara Memorial Foundation, Stryker, Landsteiner Foundation for Blood Transfusion Research, Japan Agency for Medical Research and Development, National University of Ireland, Wellcome Trust, Comunidad de Madrid, UK Research and Innovation, North Carolina Central University, CancerFree KIDS, Armauer Hansen Research Institute, Natural Science Foundation of Xiamen City, Cancer Research Institute, Kanazawa University, Kaken Pharmaceutical, British Heart Foundation, National University of Singapore, Ministry of Education - Singapore, Deutsche Forschungsgemeinschaft, Agence Nationale de la Recherche, Schweizerischer Nationalfonds zur Förderung der Wissenschaftlichen Forschung, National Natural Science Foundation of China, Coordenação de Aperfeiçoamento de Pessoal de Nível Superior, Chinese Academy of Sciences, Pukyong National University, Fonds De La Recherche Scientifique - FNRS, Belgian Federal Science Policy Office, Ministry of Science and Technology of the People's Republic of China, China Postdoctoral Science Foundation, Fondation pour la Recherche Médicale, Government of Jiangsu Province, Fonds Wetenschappelijk Onderzoek, Agence Nationale de Recherches sur le Sida et les Hépatites Virales, Conselho Nacional de Desenvolvimento Científico e Tecnológico, Korea Health Industry Development Institute, National Research Foundation of Korea, Kowa Life Science Foundation, Secom Science and Technology Foundation, Vrije Universiteit Brussel, Narodowym Centrum Nauki, Lietuvos Mokslo Taryba, Natural Science Foundation of Guangxi Province, Natural Science Foundation of Jiangsu Province, Department of Science and Technology of Sichuan Province, Ministerio de Ciencia e Innovación, National Tsing Hua University, Natural Science Foundation of Chongqing, BHF Centre of Research Excellence, Oxford, ReumaNederland, Natural Science Foundation of Tianjin City, Natural Science Foundation of Shandong Province, Astellas Foundation for Research on Metabolic Disorders, Hamaguchi Foundation for the Advancement of Biochemistry, Institut de Physique du Globe de Paris, French Infrastructure for Integrated Structural Biology, NOVARTIS Foundation (Japan) for the Promotion of Science, National Office for Philosophy and Social Sciences, Promotion and Mutual Aid Corporation for Private Schools of Japan, Venture and Innovation Support Program for Chongqing Overseas Returnees, Chengdu University, Ministry of Science and ICT, South Korea, Shahid Sadoughi University of Medical Sciences, National Science and Technology Major Project, National Institutes of Health, Defense Advanced Research Projects Agency, Stand Up To Cancer, Key Technology Research and Development Program of Shandong, Roche Diagnostics, HORIZON EUROPE Framework Programme, Engineering and Physical Sciences Research Council, Biotechnology and Biological Sciences Research Council, Australian Research Council, Japan Society for the Promotion of Science, Beijing Nova Program, Health and Medical Research Fund, European Regional Development Fund, Center for Molecular Medicine Cologne, University of Cologne, Guangzhou Municipal Science and Technology Project, Agencia Estatal de Investigación, National Postdoctoral Program for Innovative Talents, National Key Research and Development Program of China, Fundamental Research Funds for the Central Universities, National Key Research and Development Program of China Stem Cell and Translational Research, Direktorat Riset dan Pengabdian Masyarakat, Special Project for Research and Development in Key areas of Guangdong Province, Center of Atomic Initiative for New Materials, National Taiwan University, Basic and Applied Basic Research Foundation of Guangdong Province, National Institute on Aging, National Heart, Lung, and Blood Institute, Office of Naval Research, National Institute of Mental Health, FP7 Cooperation, Vacuum Interconnected Nanotech Workstation, Suzhou Institute of Nano-Tech and Nano-Bionics, National Science Foundation Graduate Research Fellowship Program, Banks Family Foundation
OpenAlex ID: W7169496500