Work

Methods for developing and validating outcome measures in paediatric rheumatology

Year: 2026

Type: article

Abstract: Developing and validating patient-reported outcome measures (PROMs) requires a specific methodology to ensure that these tools reliably capture patients' subjective experiences of health without clinician bias, thereby supporting their use in patient-centred care for children with chronic diseases. The aim of this article is to review this methodology, emphasising its advantages, and identify unmet needs and priorities for future research in this area. It also introduces the COSMIN and OMERACT initiatives and related aids, as well as the EULAR OML, all of which are critical for developing and selecting the most adequate PROMs in Paediatric Rheumatology.

Source: Pediatric Rheumatology

DOI: 10.1186/s12969-026-01250-3

Authors: Rafael Curbelo, María Jesús García de Yébenes, Loreto Carmona

Institution: Instituto de Salud Musculoesquelética

Language: English

Topic: Health Education and Validation

Subfield: Education

Field: Social Sciences

Domain: Social Sciences

SDG: Good health and well-being

Open Access status: gold

Estimated APC paid: $3,090