The Caregiver Protocol: A framework for integrating caregiver psychological health as a measured variable in post-acute neurological care
Year: 2026
Type: article
Abstract: Post-acute neurological care pathways end at discharge; recovery does not. Informal caregivers deliver much of post-acute neurological rehabilitation at home, during the period of greatest neuroplastic change, with no clinical monitoring of their own condition and no recognition of that condition as a determinant of patient outcome. This concept note sets out The Caregiver Protocol: a framework integrating assessment of the caregiver’s own psychological health at three defined points in the post-acute neurological pathway — discharge, thirty days, and ninety days — using instruments already validated and in clinical use, recorded alongside the patient’s clinical file, and determining the tier of support assigned. The note assembles the evidence basis for the framework: three independent cohorts linking caregiver psychological distress to patient mortality in stroke (adjusted OR 3.57 for caregiver anxiety, n=765), neurodegenerative disease (adjusted HR 1.49 per standard deviation, n=176 dyads, independent of dementia severity) and disabled older adults (n=1,262); one randomised trial establishing that an intervention delivered to caregivers delays patient institutionalisation; and an emerging neuroimaging literature reporting neurobiological correlates of caregiving strain. The Protocol has not been validated, piloted or evaluated, and no outcome data are presented. The note is deposited as a dated record of the framework and its evidence basis, ahead of a full position paper and a companion international Delphi consensus study.
Author: Bria, Andra-Cristina
Institution: University of Bern
Language: English
Topic: Nursing care and research
Subfield: Pharmacy
Field: Health Professions
Domain: Health Sciences
Open Access status: green
OpenAlex ID: W7222607322
FWCI:
Cites:
Cited by:
Related to: