Work

Governing Participatory Health Data in Public Digital Insfrastruture: Lessons from the Basque Country

Year: 2026

Type: article

Abstract: This article examines how participatory self-reporting changes when embedded in public digital health infrastructure, using the Basque Country’s Mi Diario as a case. It identifies tensions around responsibility, benefit distribution, and equitable participation, arguing that legitimate governance requires transparent data use, accountable benefit-sharing, inclusive participation pathways, and locally grounded evaluation of patients’ experiences and institutional effects within public healthcare systems.

Source: Revista internacional de los estudios vascos = Eusko ikaskuntzen nazioarteko aldizkaria = Revue internationale des ètudes basques = International journal on Basque studies, RIEV

DOI: 10.61879/j6x3t8m2

Authors: Dana Mahr, Nora Weinberger

Institution: Karlsruhe Institute of Technology

Language: English

Topic: Mobile Health and mHealth Applications

Subfield: General Health Professions

Field: Health Professions

Domain: Health Sciences

SDGs: Reduced inequalities, Peace, justice, and strong institutions, Good health and well-being

Open Access status: hybrid

OpenAlex ID: W7223246115

FWCI:

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Related to: 10