Development and validation of the booklet “Home Exercise for Children and Adolescents with CharcotMarie-Tooth Disease”
Year: 2026
Type: article
Abstract: OBJECTIVE: To develop a home-based exercise booklet for children and adolescents with CharcotMarie-Tooth disease (CMT) and to validate its content with expert judges and the target audience. METHODS: This methodological study, initiated in 2019, had the booklet content developed based on the clinical experience of specialized professionals and the scientific literature. The layout was designed in accordance with recommendations for health education materials. Physiotherapists with clinical experience in child neurology and primary caregivers were included. Eleven expert judges and 15 caregivers were selected for booklet validation. Two different questionnaires were used for content validation and adherence analysis (15 and 45 days after booklet delivery). The Content Validity Index (CVI) was used to evaluate content validity among expert judges, whereas for caregivers, response frequencies were analyzed. RESULTS: The booklet was developed in six sections, including exercises for strengthening, stretching, and balance training. Nine judges responded to the questionnaire, and all aspects assessed in the content validation achieved a minimum CVI of 0.9. Caregivers responded predominantly "agree" or "strongly agree" to all items related to the evaluation of the material. After 15 days, adherence to the proposed exercises was 53.0%, increasing to 66.0% at 45 days. CONCLUSIONS: The booklet proved to be a useful and validated tool to support the physiotherapeutic management of children and adolescents with CMT.
Source: Revista Paulista de Pediatria
Institution: Universidade de São Paulo
Language: English
Subfield: Research and Theory
Field: Nursing
Domain: Health Sciences
Open Access status: diamond
Award: G5268021672
OpenAlex ID: W7223650099