Work

The analysis of organization of medical care of wards of the foundation “The circle of Good” using orphan medications

Year: 2026

Type: article

Abstract: In accordance with the Decree of the President of the Russian Federation № 16 of 05.01.2021 "On establishment of the Foundation supporting children with severe life threatening and chronic diseases including rare (orphan) diseases, the Circle of Good ", the Foundation "Circle of Good" (hereinafter referred to as Foundation) was organized to support children with severe, life-threatening and chronic diseases including rare (orphan) diseases. The article analyzes status of orphan medications included in the Foundation lists of purchasing in terms of their registration in the Russian Federation, inclusion of orphan medication into list of vital and essential medications and into list of expensive medications. According to established status, limitations of accessibility of orphan medications outside of limits of activities of Foundation are identified.

Source: Problems of Social Hygiene Public Health and History of Medicine

DOI: 10.32687/0869-866x-2026-34-5-1300-1305

Authors: E. Yu. Shukan, I. A. Komarov, O. Yu. Aleksandrova, N. S. Smirnova

Institution: National Research Institute of Public Health named after N.A. Semashko

Language: Russian

Topic: Medical and Pharmaceutic Studies

Subfield: Pharmacology

Field: Pharmacology, Toxicology and Pharmaceutics

Domain: Life Sciences

SDG: Good health and well-being

Open Access status: hybrid

OpenAlex ID: W7224333035

FWCI:

Cites: 1

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Related to: 10