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Learning from deaths to improve lives: why England still needs a national LeDeR programme

Year: 2026

Type: article

Abstract: The National Health Service England's Learning from Lives and Deaths of People with a Learning Disability and Autistic People programme is the world's only national mortality review system for people with intellectual disability. Abandoning national mortality surveillance risks making preventable deaths less visible, with profound consequences for equity in healthcare.

Source: The British Journal of Psychiatry

DOI: 10.1192/bjp.2026.10832

Authors: Rohit Shankar, Samuel J. Tromans, Jana de Villiers, Bhathika Perera, Rory Sheehan, Indermeet Sawhney, Regi T. Alexander, Ashok Roy, Richard A. Laugharne, Jacqui Shurlock, Vivien Cooper, Matthew Hill, Jackie O’Sullivan, Sheila Hollins, Andre Strydom

Institutions: Cornwall Partnership NHS Foundation Trust, University of Plymouth, University of Leicester, Leicestershire Partnership NHS Trust, University College London, King's College London, Hertfordshire Partnership University NHS Foundation Trust, Coventry and Warwickshire Partnership NHS Trust, The Challenging Behaviour Foundation, St George's, University of London, Parliament of United Kingdom

Language: English

Topic: Down syndrome and intellectual disability research

Subfield: Public Health, Environmental and Occupational Health

Field: Medicine

Domain: Health Sciences

SDGs: Good health and well-being, Reduced inequalities

Open Access status: bronze

OpenAlex ID: W7225137755

FWCI:

Cites: 4

Cited by:

Related to: 10