Year: 2026
Type: conference-abstract
Abstract: The Central Brain Tumor Registry of the United States (CBTRUS) is a not-for-profit corporation committed to providing a resource for gathering and disseminating current epidemiologic data on all primary brain and other central nervous system tumors, malignant and non-malignant, for the purposes of accurately describing their incidence and survival patterns, evaluating diagnosis and treatment, facilitating etiologic studies, establishing awareness of the disease, and ultimately, for the prevention of all central nervous system tumors• CBTRUS is a not-for-profit 501(c)(3) corporation committed to collecting and disseminating high-quality incidence and survival data on all primary brain and other central nervous system (CNS) tumors.• CBTRUS is affiliated with the Society for Neuro-Oncology, which recognizes it as the premier resource for timely, updated statistical information of all primary brain and other CNS tumors from all central cancer registries (population-based) in the United States.• CBTRUS analyzes the largest aggregation of databases on primary brain and other CNS tumors from population-based registries in the United States participating in the National Program of Cancer Registries (NPCR) of the Centers for Disease Control and Prevention (CDC), and the Surveillance, Epidemiology, and End Results (SEER) Program of the National Cancer Institute.• CBTRUS consults on brain and other CNS tumor classification, coding, and collection to national and international organizations including the North American Association of Central Cancer Registries, NPCR, SEER, and the International Agency for Research on Cancer of the World Health Organization.• CBTRUS provides a resource for the neuroscience community that does not exist elsewhere and is recognized by the Joint Section on Tumors of the Congress of Neurological Surgeons / American Association of Neurological Surgeons.• CBTRUS is guided by experts in the field of brain and other CNS tumor research.• CBTRUS presents data in tumor groupings aligned to the Central Nervous System World Health Organization Classification of Tumours, 5th edition, volume 6, 2021 with improved clinical relevance that were previously unavailable.• CBTRUS conducts specialized data analyses in response to specific questions.• CBTRUS investigates patterns of brain and other CNS tumor incidence including trends over time and patterns by geographical area.• CBTRUS can assist in planning studies of brain and other CNS tumors by providing:-sources of collaboration to obtain cases for case control studies, -sources of collaboration for rare tumor studies, and/or -estimates of expected cases.• CBTRUS provides an incidence standard against which other data can be compared, including:-hospital case series, -clinical trials, and -cluster investigations.• CBTRUS promotes awareness of the disease of brain and other CNS tumors through presentation of descriptive statistics.
Source: Neuro-Oncology
Language: English
Subfield: Oncology
Field: Medicine
Domain: Health Sciences
Open Access status: bronze
OpenAlex ID: W7225336798