Pathways to progress: navigating the evolving field of PIDs and associated conditions — proceedings from the IPOPI Global Multi-Stakeholders’ Summit (July 2025)
Year: 2026
Type: article
Abstract: Introduction In July 2025, the International Patient Organisation for Primary Immunodeficiencies (IPOPI) held its fourth consecutive Global Multi-Stakeholders’ Summit, bringing together key stakeholders and experts in primary immunodeficiencies (PIDs) and related fields to discuss current challenges and opportunities for improving patient care. Methods This edition focused on current and projected trends to 2035 in artificial intelligence and quantum computing, the gap between primary and secondary immunodeficiencies, and the role of preventive medicine in patients’ quality of life. Results Stakeholders from all around the world gathered to examine current knowledge gaps, needs and avenues to improve the care of patients with immunodeficiency in the next ten years. Discussion Recommendations on how digital technologies can contribute to equitable access to innovative therapies are proposed. Mechanisms by which multidisciplinary teams can work together to improve the care of patients with immunodeficiencies are outlined, including how innovative screening and care plans can reduce the risk of multiorgan involvement and complications in these patients. Within the next decade, digital tools in conjunction with improved multistakeholder collaborations is most likely to contribute to the collection of standardised data, inclusive studies, and personalised treatments that will prolong, with quality, the lives of patients with immunodeficiencies.
Source: Frontiers in Immunology
Authors: Lúcia Mamede, Roser Cantenys Sabà, Johan Prévot, Sebastian Feld, Nicolas Garcelon, Mathieu Corteel, Matthew Hotchko, Silvia Sánchez-Ramón, Elena Cabezudo, Martin Larsen, Aleksandra Badura, Rita Carsetti, Adli Ali, Ibtihal Benhsaien, Tadej Avcin, Nicholas L. Rider, David M. Lowe, Siobhan O. Burns, Martin van Hagen, Roberta Anido de Pena, Martine Pergent, Jacques G. Rivière, Nizar Mahlaoui
Institutions: International Patient Organisation for Primary Immunodeficiencies, Institut d'Investigació Biomédica de Bellvitge, Universitat de Barcelona, QuTech, Delft University of Technology, Inserm, Université Paris Cité, Institut des Maladies Génétiques Imagine, Institut d'Etudes Politiques de Paris, Centre de Sociologie des Organisations, Instituto de Investigación Sanitaria del Hospital Clínico San Carlos, Hospital de Sant Joan Despí Moisès Broggi, Sorbonne Université, Centre d'Immunologie et des Maladies Infectieuses, Erasmus MC, Bambino Gesù Children's Hospital, National University of Malaysia, University of Hassan II Casablanca, University of Ljubljana, Ljubljana University Medical Centre, Carilion Clinic, Virginia Tech, Royal Free London NHS Foundation Trust, University College London, Chulalongkorn University, University of Indonesia, Vall d'Hebron Institut de Recerca, Vall d'Hebron Hospital Universitari, Hôpital Necker-Enfants Malades, Centre de Référence Déficits Immunitaires Héréditaires, Assistance Publique – Hôpitaux de Paris
Language: English
Subfield: Immunology
Field: Immunology and Microbiology
Domain: Life Sciences
Open Access status: gold
Estimated APC paid: $3,801
OpenAlex ID: W7225385982