Work

D7.1. Patient engagement activities and guidelines

Year: 2026

Type: article

Abstract: A set of guidelines and lay papers to help engaging cancer patients and caregivers across diseases. This deliverable presents the SPARC patient guide, Understanding PersonalisedCancer Medicine. The guide is written for people living with cancer, their families and carers. It explains personalised cancer medicine in clear, accessible language, so that readers can understand their options and take part in discussions about their care. The guide follows the care journey, from diagnosis through treatment, including living with ongoing cancer and life after treatment. The guide also lists European patient organisations that offer more detailed information and support for specific cancer types, including the cancers that SPARC focuses on.

Source: Zenodo (CERN European Organization for Nuclear Research)

DOI: 10.5281/zenodo.24011391

Authors: Anderson, Lauren, Williams, Clare, Comolli, Cristian, Starchenko, Polina, Ottaviano, Manuel, López Rioja, Alba, Vassal, Gilles, Muntañola Valero, Cristina

Institutions: Universidad Politécnica de Madrid, Vall d'Hebron Institute of Oncology, European Society for Paediatric Oncology

Language: English

Topic: Mental Health and Patient Involvement

Subfield: General Health Professions

Field: Health Professions

Domain: Health Sciences

SDG: Good health and well-being

Open Access status: green

OpenAlex ID: W7225399710

FWCI:

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Related to: 10