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Lived Experiences of Endometriosis‐Related Pain and Perceptions of a Blended Digital CBT Intervention: A Mixed‐Methods Study

Year: 2026

Type: article

Abstract: BACKGROUND: Endometriosis affects approximately 10% of women of reproductive age and is associated with reduced health and quality of life yet remains poorly understood and undertreated. The Digital behAvioural HeaLth treatment for chronIc pAin (DAHLIA) aims to enhance behavioural self-management and resilience to pain through six self-guided digital modules and regular therapist contact. This study aimed to explore women's lived experiences of endometriosis-related pain and their perceptions of the DAHLIA content and structure. METHODS: Six women with endometriosis were consecutively recruited. Semistructured interviews were conducted and analysed using Thematic Analysis. Qualitative findings were complemented by patient-reported outcome measures collected before and after the treatment and analysed with the Reliable Change Index. RESULTS: Participants expressed positive views of the treatment, particularly valuing therapist contact via phone/video over in-person or text-based communication. A recurring theme was feeling seen and acknowledged, contrasting previous experiences of dismissal in healthcare. Time demands were noted as a challenge. PROMs indicated reductions in pain and mixed outcomes regarding psychological symptoms and pain acceptance, suggesting potential utility of the intervention. CONCLUSION: The DAHLIA treatment appears feasible and well-received, with findings indicating potentially meaningful improvements in physical and psychological domains. This study supports DAHLIA as a promising treatment option for women with endometriosis, warranting further investigation. TRIAL REGISTRATION: ClinicalTrials.gov identifier: NCT05066087.

Source: Pain Research and Management

DOI: 10.1155/prm/6150844

Authors: Suzanne Petersson, Linnéa Engman, Ellen Carlsson, Afra Taygar, Sara Laureen Bartels, Rikard K. Wicksell