Haematology Patients’ Information Needs and Experience with Late Effects of Treatment: Findings from Australia
Year: 2014
Type: article
Abstract: This article makes a contribution to the literature on late effects for adult on-set haematology patients by presenting findings from a major study on survivorship funded by the Leukaemia Foundation of Queensland.The qualitative study involved in-depth interviews with fifty individuals diagnosed with a haematological malignancy and one focus group.The article focus is on a subset of findings on the individual's perception of the major late effects experienced and their attitudes and perspectives on information required about late effects at the point of treatment.The evidence from the research points to positive outcomes from treatments with many participants reporting little or no problem with late effects.However, the findings also point to major difficulties for some patients associated with late effects such as CRF (cancer-related fatigue), neuropathy, and infertility.The findings demonstrate the complexity of haematology patients' informational needs that require active, ongoing, patientcentred understanding and care.The hope and expectation is that the findings will deepen the understanding of the experience of late effects for haematology patients and provide useful information for haematology/oncology health professionals for their important work in this area.
Source: Griffith Research Online
Author: Pamela Della McGrath
Language: English
Topic: Cancer survivorship and care
Subfield: Oncology
Field: Medicine
Domain: Health Sciences
Open Access status: green
OpenAlex ID: W947983428