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Evelien S. van Hoorn

Observed names: E Hoorn, E. Shannon van Hoorn, Evelien S Van Hoorn, Evelien S van Hoorn, Evelien Shannon Van Hoorn, Van Hoorn, E.S. (author)
ORCID: 0000-0001-9661-2746
Observed ORCID: 0000-0001-9661-2746
OpenAlex ID: A5032853786
Value-Based Integrated Care: A Systematic Literature Review
2024 · Evelien S. van Hoorn, Lizhen Ye, et al. · International Journal of Health Policy and Management · 29
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SYMPHONY consortium: Orchestrating personalized treatment for patients with bleeding disorders
2022 · Marjon H. Cnossen, Iris van Moort, et al. · Journal of Thrombosis and Haemostasis · 28
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The ethics of gene therapy for hemophilia: a narrative review
2023 · Lieke Baas, Rieke van der Graaf, et al. · Journal of Thrombosis and Haemostasis · 27
Generic PROMIS item banks in adults with hemophilia for patient‐reported outcome assessment: Feasibility, measurement properties, and relevance
2021 · Isolde A.R. Kuijlaars, Lorynn Teela, et al. · Research and Practice in Thrombosis and Haemostasis · 17
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Patient‐reported outcomes in autosomal inherited bleeding disorders: A systematic literature review
2022 · Evelien S. van Hoorn, Maite E. Houwing, et al. · Haemophilia · 13
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Psychometrics of the patient-reported outcomes measurement information system measures in hemophilia: the applicability of the pediatric item banks
2023 · Lorynn Teela, Michiel A.J. Luijten, et al. · Research and Practice in Thrombosis and Haemostasis · 6
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Harmonizing patient‐reported outcome measurements in inherited bleeding disorders with PROMIS
2022 · Evelien S. van Hoorn, Lorynn Teela, et al. · Haemophilia · 6
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Psychometrics of patient-reported outcomes measurement information system in von Willebrand disease, inherited platelet function disorders, and rare bleeding disorders
2024 · Evelien S. van Hoorn, Sterre P.E. Willems, et al. · Research and Practice in Thrombosis and Haemostasis · 4
Patient-relevant health outcomes for von Willebrand disease, platelet function disorders, and rare bleeding disorders: a Delphi study
2023 · Evelien S. van Hoorn, Hester F. Lingsma, et al. · Research and Practice in Thrombosis and Haemostasis · 3
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Facilitators and Barriers of the Use of Prognostic Models for Clinical Decision Making in Acute Neurologic Care: A Systematic Review
2025 · Ellen X. Y. Hu, Evelien S. van Hoorn, et al. · Medical Decision Making · 2
Patient experiences with value-based healthcare interventions at the HIV outpatient clinic of the Erasmus Medical Centre
2024 · Evelien S. van Hoorn, Nadine Y. Bassant, et al. · PLoS ONE · 2
Experiences and Needs Regarding Information Provision in Children With Haemophilia: A Qualitative Study on Caregivers’ and Healthcare Providers’ Perspectives
2025 · Caroline M. A. Mussert, Nadia C. W. Kamminga, et al. · Haemophilia · 1
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Telemonitoring for high-risk pregnancies (PregnaDigit EU): an international hybrid type 2 study protocol
2026 · Hélène Françoise Caroline van Oorschot, Rebecca Vellekoop-van Ravenswaaij, et al. · BMJ Open
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We are confused—are you? Towards terminology clarity in care delivery: pathway, journey, process, or chain?
2026 · Diaz M Prameyllawati, Evelien S van Hoorn · International Journal for Quality in Health Care
Hemophilia care in the Netherlands: identification and visualization of the care pathway for young children with hemophilia
2026 · Evelien S. van Hoorn, Caroline M. A. Mussert, et al. · BMC Health Services Research
How to develop care pathways: a practical overview of methodological approaches
2026 · Caroline Merel Anouck Mussert, Simone H Reitsma, et al. · BMJ Health & Care Informatics
The Haemophilia Health Journey: Experiences and Unmet Care Needs of Caregivers and Their Young Children
2026 · Caroline M. A. Mussert, Eva K. Kempers, et al. · Haemophilia
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Facilitators and Barriers to Cross-border Implementation of Cardiotocography Telemonitoring in High-Risk Pregnancies (PregnaDigit EU): a Qualitative Pre-Implementation Study (Preprint)
2026 · Hélène Françoise Caroline van Oorschot, Rebecca Vellekoop- van Ravenswaaij, et al.
8 Patient perspectives on the implementation of patient-reported outcome measures in the lung cancer consultation room
2025 · Jente M Klok, Evelien S van Hoorn, et al.
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Delayed increase in inflammation and thenar VO2 in marathon runners
2010 · A Lima, J Weigel, et al. · Critical Care
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Works count: 21
Citation count: 138
H-index: 6
I10-index: 5
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