Get started
Author

Nora Wells

Identifying Children With Special Health Care Needs: Development and Evaluation of a Short Screening Instrument
2002 · Christina D. Bethell, Debra Read, et al. · Ambulatory Pediatrics · 697
Patient- and Family-Centered Care Coordination: A Framework for Integrating Care for Children and Youth Across Multiple Systems
2014 · Renee M. Turchi, Richard C. Antonelli, et al. · PEDIATRICS · 377
Inequities In Health Care Needs For Children With Medical Complexity
2014 · Dennis Z. Kuo, Anthony Goudie, et al. · Health Affairs · 206
Access to Specialty Medical Care for Children With Mental Retardation, Autism, and Other Special Health Care Needs
2003 · Marty Wyngaarden Krauss, Stephen Gulley, et al. · Mental Retardation · 199
Families of Children With Medical Complexity: A View From the Front Lines
2018 · Carolyn Allshouse, Meg Comeau, et al. · PEDIATRICS · 184
The Consequences of Caring
2004 · Valerie Leiter, Marty Wyngaarden Krauss, et al. · Journal of Family Issues · 155
A Family-Centered, Community-Based System of Services for Children and Youth With Special Health Care Needs
2007 · James M. Perrin, Diane Romm, et al. · Archives of Pediatrics and Adolescent Medicine · 111
A Narrative Review of Patient and Family Engagement
2016 · Crystal W. Cené, Beverley H. Johnson, et al. · Medical Care · 98
Optimizing Health and Health Care Systems for Children with Special Health Care Needs Using the Life Course Perspective
2013 · Christina D. Bethell, Paul W. Newacheck, et al. · Maternal and Child Health Journal · 69
Navigating Systems of Care: Results From a National Survey of Families of Children With Special Health Care Needs
2001 · Marty Wyngaarden Krauss, Nora Wells, et al. · Children s Services · 56
Benefits For Employees With Children With Special Needs: Findings From The Collaborative Employee Benefit Study
2007 · James M. Perrin, Christina F. Fluet, et al. · Health Affairs · 36
Psychometric Evaluation of a Consumer-Developed Family-Centered Care Assessment Tool
2015 · Nora Wells, Suzanne Bronheim, et al. · Maternal and Child Health Journal · 33
PDF
Family-centered, Culturally, and Linguistically Competent Care: Essential Components of the Medical Home
2009 · Tawara D. Goode, Sonja Harris Haywood, et al. · Pediatric Annals · 26
Historical Perspective on Family-Centered Care
2011 · Nora Wells · Academic Pediatrics · 23
National Research Agenda on Health Systems for Children and Youth With Special Health Care Needs
2022 · Christopher J. Stille, Ryan J. Coller, et al. · Academic Pediatrics · 19
Research on Family Health and Children and Youth With Special Health Care Needs
2022 · Karen A. Kuhlthau, Stefanie G. Ames, et al. · Academic Pediatrics · 18
Parents’ Perspectives on Access to Rehabilitation Services for Their Children with Special Healthcare Needs
2009 · Margaret E. O’Neil, Tracy E. Costigan, et al. · Pediatric Physical Therapy · 18
The Eye of the Beholder: A Discussion of Value and Quality From the Perspective of Families of Children and Youth With Special Health Care Needs
2017 · Betsy Anderson, Julie Beckett, et al. · PEDIATRICS · 15
Children and Youth with Special Health Care Needs: Progress Towards More Family-Centered Systems of Care
2024 · Deborah Klein Walker, James M. Perrin, et al. · Maternal and Child Health Journal · 11
Incorporating Patient- and Family-Centered Care Into Practice: The PA Medical Home Initiative
2018 · Salini Mohanty, Nora Wells, et al. · PEDIATRICS · 11
Family Leaders and Workforce Leadership Development
2014 · Michelle C. Reynolds, Megan Birzer, et al. · Maternal and Child Health Journal · 10
Families Are Key in Improving Quality
2011 · Nora Wells, Lee Partridge · Academic Pediatrics · 8
Children with Special Health Care Needs Screener
2002 · Christina D. Bethell, Debra Read, et al. · PsycTESTS Dataset · 8
“Nothing About Us Without Us”
2017 · Melissa Clark Vickers, Nora Wells · Academic Pediatrics · 7
PDF
Scaling Family Voices and Engagement to Measure and Improve Systems Performance and Whole Child Health: Progress and Lessons from the Child and Adolescent Health Measurement Initiative
2023 · Christina D. Bethell, Nora Wells, et al. · Maternal and Child Health Journal · 6
PDF
Works count: 34
Citation count: 2,415
H-index: 17
I10-index: 21
Year
Topic
Type