Year: 2015
Type: article
Abstract: marketing.Despite the government's vision of linking all personal records, allegations of intrusion into privacy-due to data collection and utilization-continue to be made.In 2012, a local NGO filed a lawsuit to claim citizens have a right to "opt out" of academic applications of the NHIRD because these applications go beyond the original insurance purpose and scope.Although the Taipei High Administrative Court, in June 2014, rendered its decision in favor of the government, based on reasonable use, public interest, and sufficient de-identification practices, the controversy and ongoing appeals have caused concern and may stop a variety of applications.The government's dream of "Big Data" faces sharp challenges, even at its very inception.This paper argues that the traditional approach of individual autonomy, such as notice and consent and the freedom to "opt in" or "opt out," is inadequate to protect privacy and safeguard autonomy in the rapidly growing big-data era.A possible solution would be a mechanism that ensures the privacy of medical data by providing individuals with a platform that allows them to monitor how their data have been used, by whom, and for what purposes.This paper contends that a system whereby individuals can check the status of their personal medical data and receive invitations to collaborate on privacy protection is essential to safeguard the privacy of data and empower individuals to control its use.This kind of democratic participation would facilitate transparency, create trust, and lead to a win-win situation between data subjects and data users.
Source: Annals of Global Health
Institutions: University of Michigan, Ghana Health Service, University of Ghana
Language: English
Subfield: General Health Professions
Field: Health Professions
Domain: Health Sciences
Open Access status: gold
Estimated APC paid: $1,200
OpenAlex ID: W1968489296