Work

A biomedical research permissions ontology: cognitive and knowledge representation considerations

Year: 2010

Type: conference-paper

Abstract: In designing a comprehensive mechanism for managing informed consents and permissions for biomedical research involving human participants, a significant effort is dedicated to the development of standardized classification of these consents and permissions. In this paper, we describe the considerations and implications of this effort that should be addressed during the development of a Biomedical Research Permissions Ontology (RPO). It is hoped that this standardization will allow disparate research institutions to pool research data and associated consents and permissions in order to facilitate collaborative translational research projects across multiple institutions and subsequent new breakthroughs in medicine while providing: 1) essential built in protections for privacy and confidentiality of research participants and 2) a mechanism for insuring that researchers adhere to patient's intent whether to participate in research or not.

DOI: 10.1145/1920320.1920322

Authors: Jihad Obeid, Davera Gabriel, Iain Sanderson

Institution: Medical University of South Carolina

Language: English

Topic: Ethics in Clinical Research

Subfield: Public Health, Environmental and Occupational Health

Field: Medicine

Domain: Health Sciences

Open Access status: green

Funders: National Institutes of Health, U.S. National Library of Medicine, National Center for Research Resources

Awards: South Carolina Clinical & Translational Research Institute (SCTR), UC Davis Clinical and Translational Science Center, An Open Source Research Permissions Framework for South Carolina, G9000221167

OpenAlex ID: W1985647394

FWCI: 12.01

Cites: 15

Cited by: 5

Related to: 10