Qos-25a Study of Childhood Cancer Survivors' Engagement With Long-term Follow-up Care
Year: 2016
Type: article
Study design: Observational Study
Abstract: In the UK, there are now over 40,000 adult survivors of childhood tumours. However, approximately two-thirds are at risk of continuing substantial illness, impairment and limitations due to adverse late effects of the cancer or treatment received in childhood. To improve their health and well-being, it is essential that they have the opportunity to access an appropriate survivorship multi-agency service to advise and aid in the management of late effects. However, these clinics have high rates of non-attendance and it is challenging to encourage continued engagement with the service by those who are well and cancer-free. This project sought to examine the perceptions of childhood cancer survivors of a Late Effects Clinic (LEC) via a paper questionnaire using closed and Likert scale questions and open text responses. From the 458 questionnaires posted, 113 were returned (24.7 % response rate). Of these 25[KK1] % had a primary diagnosis of a CNS tumour[KK2] . The majority of respondents had used the LEC on at least 2 occasions (89%, n = 101). Most respondents were ‘satisfied’ or ‘very satisfied’ with their LEC appointment (73%, n= 83) and felt that it was very important to attend LEC (86%, n = 97). Not all respondents felt fully informed of the purpose of attending the LEC (21%, n = 24) or knowledgeable of their potential late effects and test results (31%, n = 35) even though they rated this as very important (89%, n = 101). Barriers to attending LEC were given as work commitments (36%, n = 43) and the distance to the clinic (40%, n = 48).
Source: Neuro-Oncology
Authors: Nicky Thorp, Katherine Knighting, Lucy Bray, James Hayden, Laura Elder, Kate Hancock, Therese Otty, Julian Hampton-Matthews, Lynda Appleton, Michelle Wright
Language: English
Field: Medicine
Domain: Health Sciences
Open Access status: green
OpenAlex ID: W2425705505