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The Autism Family Experience Questionnaire (AFEQ): An Ecologically-Valid, Parent-Nominated Measure of Family Experience, Quality of Life and Prioritised Outcomes for Early Intervention

Year: 2017
Type: article
Abstract: There is a lack of measures that reflect the intervention priorities of parents of children with autism spectrum disorder (ASD) and that assess the impact of interventions on family experience and quality of life. The Autism Family Experience Questionnaire (AFEQ) was developed through focus groups and online consultation with parents, and reflected parental priorities. It was then administered to the parents of children enrolled in the Pre-school Autism Communication Trial and its 6-year follow-up study. The AFEQ showed good convergent validity with well-established measures of child adaptive functioning, parental mental health and parental wellbeing. It was sensitive to change in response to a parent-mediated intervention for young children with autism, showing treatment effect at treatment endpoint which increased at six-year follow-up.
DOI: 10.1007/s10803-017-3350-7
Authors: Kathy Leadbitter, Catherine Aldred, Helen McConachie, Ann Le Couteur, Dharmi Kapadia, Tony Charman, Wendy Macdonald, Erica Salomone, Richard Emsley, Jonathan Green
Institutions: University of Manchester, Newcastle University, Cumbria Northumberland Tyne and Wear NHS Foundation Trust, King's College London, Greater Manchester Mental Health NHS Foundation Trust, University of Turin, Manchester Academic Health Science Centre, Royal Manchester Children's Hospital
Language: English
Open Access status: hybrid
Estimated APC paid: $3,190
OpenAlex ID: W2767995481
FWCI: 2.338
Cites: 54
Cited by: 101
Related to: 10