Patient and Family Engaged Care: An Essential Element of Health Equity
Year: 2020
Type: review
Abstract: In this paper, we emphasize and explore health equity as an integral component of a culture of patient and family engaged care (PFEC), rather than an isolated or peripheral outcome. To examine the role of PFEC in addressing health inequities, we build on the 2017 NAM Perspectives discussion paper "Harnessing Evidence and Experience to Change Culture: A Guiding Framework for Patient and Family Engaged Care." Informed by both scientific evidence and the lived experience of patients, their care partners, practitioners, and health system leaders, the paper by Frampton et al. introduced a novel Guiding Framework that delineates critical elements that work together to co-create a culture of PFEC, while also depicting a logical sequencing for implementation that facilitates progressive change and improvement toward the Quadruple Aim outcomes of better culture, better care, better health, and lower costs. In this paper, the authors highlight the need to integrate addressing health and health care disparities and improving health equity as core components of the framework to ensure the culture and policy changes necessary to meaningfully engage patients, health system staff, families, and communities.
Source: NAM Perspectives
DOI: 10.31478/202007a
Authors: Melissa Simon, Cynthia Baur, Sara Guastello, Kalpana Ramiah, Janice Tufte, Kimberlydawn Wisdom, Michelle Johnston-Fleece, Anna Cupito, Ayodola Anise
Institutions: Northwestern University, Robert H. Lurie Comprehensive Cancer Center of Northwestern University, University of Maryland, Baltimore, University of Maryland, College Park, America's Essential Hospitals, Henry Ford Health, Patient-Centered Outcomes Research Institute, National Academy of Medicine
Language: English
Subfield: General Health Professions
Field: Health Professions
Domain: Health Sciences
Open Access status: green
OpenAlex ID: W3041091990