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”The Dementia Diva Strikes Again!”: A Thematic Analysis of How Informal Carers of Persons with Dementia Use TikTok

Year: 2021

Type: conference-paper

Abstract: Informal carers of persons with dementia often resort to social media to alleviate their sense of social isolation and cultivate their platform to share their experience in care. The present study performed a preliminary analysis on how TikTok creators share their personal experience caring for a loved one with dementia through content shared under the hashtag #dementiacaregiver. We performed a systemic review and inductive thematic analysis of 447 TikTok posts. The content under #dementiacaregiver was interpreted to form five primary themes: (1) realities of caregiving, (2) a little levity, (3) advice for caring, (4) engagement with viewers, and (5) sensory stimulation. TikTok seems to have provided carers with a tool for artistic and social expression that fostered a sense of community and a place for remote belonging.

Source: International Conference on Human-Computer Interaction with Mobile Devices and Services (MobileHCI)

DOI: 10.1145/3447527.3474857

Authors: Shiroq Al-Megren, Khalid Majrashi, Ragad Mohammad Allwihan

Institutions: Massachusetts Institute of Technology, Institute of Public Administration, King Saud bin Abdulaziz University for Health Sciences

Language: English

Topic: Dementia and Cognitive Impairment Research

Subfield: Psychiatry and Mental health

Field: Medicine

Domain: Health Sciences

SDG: Good health and well-being

Open Access status: hybrid

OpenAlex ID: W3203050990

FWCI: 5.818

Cites: 15

Cited by: 18

Related to: 10