Gathering Global Perspectives to Establish the Research Priorities and Minimum Data Sets for Degenerative Cervical Myelopathy: Sampling Strategy of the First Round Consensus Surveys of AO Spine RECODE-DCM
Year: 2021
Type: article
Study design: Observational Study
Abstract: STUDY DESIGN: Survey. INTRODUCTION: AO Spine Research Objectives and Common Data Elements for Degenerative Cervical Myelopathy (AO Spine RECODE-DCM) is an international initiative that aims to accelerate knowledge discovery and improve outcomes by developing a consensus framework for research. This includes defining the top research priorities, an index term and a minimum data set (core outcome set and core data elements set - core outcome set (COS)/core data elements (CDE)). OBJECTIVE: To describe how perspectives were gathered and report the detailed sampling characteristics. METHODS: A two-stage, electronic survey was used to gather and seek initial consensus. Perspectives were sought from spinal surgeons, other healthcare professionals and people with degenerative cervical myelopathy (DCM). Participants were allocated to one of two parallel streams: (1) priority setting or (2) minimum dataset. An email campaign was developed to advertise the survey to relevant global stakeholder individuals and organisations. People with DCM were recruited using the international DCM charity Myelopathy.org and its social media channels. A network of global partners was recruited to act as project ambassadors. Data from Google Analytics, MailChimp and Calibrum helped optimise survey dissemination. RESULTS: Survey engagement was high amongst the three stakeholder groups: 208 people with DCM, 389 spinal surgeons and 157 other healthcare professionals. Individuals from 76 different countries participated; the United States, United Kingdom and Canada were the most common countries of participants. CONCLUSION: AO Spine RECODE-DCM recruited a diverse and sufficient number of participants for an international PSP and COS/CDE process. Whilst PSP and COS/CDE have been undertaken in other fields, to our knowledge, this is the first time they have been combined in one process.
Source: Global Spine Journal
Authors: Oliver D. Mowforth, Danyal Z Khan, Mei Yin Wong, George A. E. Pickering, Lydia Dean, Joe Magee, Laura Mullarkey, Yuri Hirayama, Martina Rihova, Max Butler, Max Stewart, Beth Goulson, Shahzaib Ahmed, Kai Fricke, Vladimir Popa-Nimigean, Zack Millar, Ashwin Venkatesh, Alice Willison, Keerthi Senthil, Olesja Hazenbiller, Ellen Sarewitz, Iwan Sadler, Toto Gronlund, Lindsay Tetreault, James S. Harrop, Bizhan Aarabi, Vafa Rahimi-Movaghar, Shekar N Kurpad, James D. Guest, Jefferson R. Wilson, Brian K. Kwon, Michael G. Fehlings, Angus G.K. McNair, Benjamin M. Davies, Mark R.N. Kotter
Institutions: University of Cambridge, Addenbrooke's Hospital, University of Sheffield, University of Dundee, AO Foundation, Myelopathy.org, National Institute for Health and Care Research, University of Southampton, NYU Langone Health, New York University, Thomas Jefferson University, University of Maryland, Baltimore, Tehran University of Medical Sciences, Medical College of Wisconsin, University of Miami, University of Toronto, University of British Columbia, Vancouver Spine Surgery Institute, University of Bristol
Language: English
Subfield: Surgery
Field: Medicine
Domain: Health Sciences
Open Access status: gold
Estimated APC paid: $2,100
Awards: G1391596979, Patient centred research for Degenerative Cervical Myelopathy, G5726957414, Improving neurological outcome in Cervical Spondylotic Myelopathy, Enhancing safe and transparent rectal cancer surgery innovation, POsterior Laminectomy and FIXation for Degenerative Cervical Myelopathy [POLYFIX-DCM]
OpenAlex ID: W4200112130