Work

Assessing Quality of Life Using FHIR – How to Combine Patient Reported Outcome with Patient Generated Data for Better Compliance

Year: 2023

Type: book-chapter

Abstract: Quality of life (QoL) is affected by environmental influences and varies between patients. A combined measurement through Patient Reported Outcomes (PROs) and Patient Generated Data (PGD) may enhance the detection of QoL impairments by a longitudinal survey. Leveraging different approaches of QoL measurement techniques, the challenge is to combine data in a standardized, interoperable way. We developed an app (Lion-App) to semantically annotate data from sensor systems as well as PROs to be merged in an overall analysis of QoL. A FHIR implementation guide was defined for a standardized assessment. To access sensor data the interfaces of Apple Health or Google Fit are used instead of integrating various provider directly into the system. Since QoL cannot be collected exclusively via sensor values, a combination of PROs and PGD is necessary. PGD enable a progression of QoL which offers more insight into personal limitations whereas PROs give insight about personal burden. The use of FHIR enables structured exchange of data while personalized analyses might improve therapy and outcome.

Source: Studies in health technology and informatics

Parent work: Caring is Sharing – Exploiting the Value in Data for Health and Innovation: Proceedings of MIE 2023

DOI: 10.3233/shti230083

Authors: Chantal N.L. Beutter, Patrick Werner, Stefan Sigle, Uwe Marc Martens, Christian Fegeler

Institutions: MOLIT Institut für Personalisierte Medizin, SLK-Kliniken Heilbronn, Heilbronn University

Language: English

Topic: Mobile Health and mHealth Applications

Subfield: General Health Professions

Field: Health Professions

Domain: Health Sciences

SDG: Good health and well-being

Open Access status: hybrid