Answering the call: co-designing a global trials network for cerebral palsy
Year: 2024
Type: article
Abstract: People with cerebral palsy (CP) demand more timely research delivering results.1 The discovery of new treatments takes decades and costs millions of dollars,2 and the translation into usual care takes time and effort from clinicians. The pace of research feels too slow for people with CP, where timely intervention prevents significant complications. With over 20 million affected globally, CP, the world’s most common lifelong physical disability, presents substantial unmet needs, exacerbated by the lack of empirical certainty in some existing treatments.
Authors: Iona Novak, Michael Fahey, Bernard Dan, Simon Craig, Alexandra Griffin, Paul Gross, Mikkel Damgaard Justiniano, Annabel Webb, Maria Mc Namara, Jens Bo Nielsen, Thomas Snelling, Anina Ritterband-Rosenbaum, M. Wade Shrader, Lars Adde, Catherine Arnaud, Marina Brandao, Sylvain Brochard, Annemieke Buizer, Simon Craig, Bernard Dan, Michael Fahey, Charlie Fairhurst, Darcy Fehlings, Kathleen Friel, Paul Gross, Andrea Guzzetta, Ann-Christin Eliasson, Christina Høi-Hansen, Reidun Birgitta Jahnsen, Mette Johansen, Angelina Kakooza Mwesige, Marjolijn Ketelaar, Karin Lind, Egmar Longo, Bente Maimann, Maria Mc Namara, Ronit Mesterman, Jenna Mitchell, Elegast Monbaliu, Catherine Morgan, Christopher J. Newman, Jens Bo Nielsen, Iona Novak, Els Ortibus, Gija Rackauskaite, Anina Ritterband-Rosenbaum, Solveig Sigurdardottir, Tom Snelling, M. Wade Shrader
Institutions: The University of Sydney, Cerebral Palsy Alliance, Monash Health, Monash University, Université Libre de Bruxelles, Royal Children's Hospital, Monash Medical Centre, Murdoch Children's Research Institute, Cerebral Palsy Research Network, Elsass Foundation, University of Copenhagen, Chalmers University of Technology, Centre Hospitalier Universitaire de Toulouse, Hôpital Purpan, Centre d'Epidémiologie et de Recherche en santé des POPulations de Toulouse, Centre Hospitalier Régional Universitaire de Brest, Laboratoire de Traitement de l'Information Médicale, Amsterdam UMC Location Vrije Universiteit Amsterdam, Institut d'Astrophysique de Paris
Language: English
Subfield: Rehabilitation
Field: Medicine
Domain: Health Sciences
Open Access status: gold
Estimated APC paid: $4,000
Funders: Elsass Fonden, Cerebral Palsy Alliance
OpenAlex ID: W4401055487