Work

What are pregnant women's information needs and information seeking behaviors prior to their prenatal genetic counseling?

Year: 2005

Type: article

Abstract: As a result of the Human Genome Project, more genetic diagnostic tests have become available to the public and genetic-related information has also grown exponentially. Pregnant women are now routinely offered tests for chromosomal disorders and screenings for genetic conditions that are relevant to their situations. In order to facilitate the information system (IS) development to support their informed decision-making, it is imperative for the IS designer to recognize their unique information needs and patterns of information seeking behavior (ISB) first. This paper presents results of a pilot study that examined pregnant women's information needs, ISBs, and information resources used prior to their prenatal genetic counseling. Findings suggest three distinctive areas, content, format, and timing, for IS design considerations.

Source: Europe PMC (PubMed Central)

Authors: Yichuan Hsieh, Patricia Flatley Brennan

Institution: University of Wisconsin–Madison

Language: English

Topic: Health Literacy and Information Accessibility

Subfield: General Health Professions

Field: Health Professions

Domain: Health Sciences

SDG: Good health and well-being

Open Access status: green

Funder: U.S. National Library of Medicine

Award: Computation and Informatics in Biology and Medicine