Bancos genómicos en México: gobernanza pública, propiedad privada y la ética del acceso controlado
Year: 2026
Type: article
Abstract: Recent genomic research from the Mexican Biobank (MXB) highlights the importance of large - scale population datasets for understanding genetic variation in Mexican and Hispanic populations. In parallel, the oriGen Project has emerged as another large - scale initiative to generate genomic data from Mexican adults, establishing one of the country’s largest genomic biobanks. Although both initiatives share the goal of expanding population genomics resources, they differ substantially in their institutional structures, governance frameworks, and data access models. While MXB operates within a public institutional framework, the oriGen Project is organized under a private governance model that includes irreversible consent provisions and international commercial sequencing partnerships. This perspective article examines the ethical, legal, and governance implications of these arrangements, particularly regarding genomic sovereignty and public interest. We argue that controlled - open access models managed by private entities, particularly when they incorporate high fees and exemption mechanisms whose eligibility, scope, approval criteria, coverage, and application are not fully public or auditable, can restrict local scientific participation and favor asymmetries in the appropriation of national genomic value.
DOI: 10.34141/ljcs9425358
Authors: Gilberto Castañeda-Hernández, Eduardo Pérez-Campos, María Teresa Hernández-Huerta, Laura Pérez Campos Mayoral, Sonia Moreno-Cabral, José Trinidad Sánchez-Vega, Daniel López Regalado, Nahui Samanta Nájera-Segura, Francisco Gutiérrez-Delgado, María Magdalena Serrano Ortega, Héctor Martínez Ruíz, Eduardo Pérez Campos, Federico del Razo López, Zoila Mora-Guzmán, Anahí Jobeth Borrás-Enríquez, Sergio Alberto Ramírez-García, Jesús Elizarrarás-Rivas, Lilian Dolores Chel Guerrero, Juan Alpuche, Guillermo Aquino-Jarquín, Héctor Alejandro Cabrera-Fuentes, Efrén Emmanuel Jarquín González
Institutions: Centro de Investigación y de Estudios Avanzados del Instituto Politécnico Nacional, Instituto Tecnológico de Oaxaca, Tecnológico Nacional de México, Benito Juárez Autonomous University of Oaxaca, Instituto Tecnológico de Tijuana, Universidad Nacional Autónoma de México, Instituto Nacional de Cardiología, Instituto Tecnológico de Toluca, Tuxtla Gutierrez Institute of Technology, Mexican Social Security Institute, Instituto Tecnológico de Mérida, Hospital Infantil de México Federico Gómez, Hospital General De Zona, Imam Abdulrahman Bin Faisal University, Secretaria de Salud
Language: Spanish
Topic: Ethics in Clinical Research
Field: Medicine
Domain: Health Sciences
SDG: Reduced inequalities
Open Access status: hybrid
OpenAlex ID: W7201847219