What do Spanish people with dementia and their relatives think of the UK-codesigned ICanDo service for supporting activity participation?
Year: 2024
Type: conference-paper
Abstract: BackgroundThe ICanDo pathway was co-designed in Manchester (IDoService, EU H2020, n° 895620, 2020-2022) to support community dwelling people living with mild to moderate dementia to adopt a more positive outlook on participation in meaningful activities. It is designed to guide individuals to think about the activities they would enjoy and that make sense to them values, which opportunities are available to them and how they could take part in them. It is supported by a workbook providing content and guidance about the three distinct stages (Niedderer et al., 2023). While this tool is still under refinement (ICanDo Service, 2023-2024), the Span-ICanDo study aimed to investigate if the pathway might be perceived as relevant to the Spanish population (Vitalise, Horizon Europe, n° 101007990). MethodThree one-hour workshops have been organised were respectively conducted with seven people with mild cognitive impairments, two people with mild dementia, and four relatives of individuals with cognitive impairments (INTRAS neuropsychology clinic services, Valladolid). ResultsParticipants perceived the ICanDo pathway as a good tool for encouraging self-reflection and empowerment in people with mild cognitive impairment. They judged it as visually appealing (warm colors, many pictures, font size). They suggested making it even more interactive (i.e., possibility to stick personal pictures or notes). Participants with cognitive impairments highlighted their preference for group sessions as they felt that exploring the workbook and sharing experiences in a group setting could enhance its effectiveness and enjoyment. ConclusionPreliminary findings suggest this UK co-designed tool may also be effectively applied in the Spanish context. Participants praised characteristics that guided the initial co-design of the tool (empowerment, making it social, visually attractive) while making new suggestions. A next step would be to set up a pilot to delve further into investigating the transcultural relevance for deploying the ICanDo Pathway in Spain.
Source: HAL
Language: English
Subfield: Psychiatry and Mental health
Field: Medicine
Domain: Health Sciences
Open Access status: green
OpenAlex ID: W7205811017