Protocol 1: Pediatric Rare Disease Clinical Trials Inventory: A Living Scoping Review Protocol
Year: 2025
Type: article
Abstract: Scoping review protocol to develop an inventory of pediatric rare disease clinical trials, updated on an ongoing basis, to serve as a database to support research about the design, implementation, and evaluation of such trials.
Authors: Iverson, Emma, Stratton, Catherine, McGowan, Jessie, Campbell, Craig, Lacaze-Masmonteil, Thierry, Mitchell, John J., Offringa, Martin, Venkateswaran, Sunita, Batthish, Michelle, Bystrova, Yunna, Carevic, Mateja, Deliscar, Suzanne, Doherty-Kirby, Amanda, Gravel, Christopher, Grobbecker, Cara, Hilderley, Alicia, Sandhu, Kaljit Kaur, Episseyo, Patrick Kelvin, Knisley, Lisa, Kumar, Simone, Lai, Meng-Chuan, Lai, Veronica, Levert, Stéphanie, Lopes Sadafi, Sarah, Marwaha, Ashish, Matthews, Madeleine, Muchie, Wubalem, O. M. V. Lopes, Priscilla, Portales-Casamar, Elodie, Pratt Tremblay, Gabrielle, Peer, Leah Sarah, Sinan, Israa, Stewart, Breanne, Vandal, Josée, Wakfer, Kristina, Wang, Michelle, Potter, Beth
Institutions: University of Ottawa, University of Toronto, Western University, University of Calgary, McGill University Health Centre, London Health Sciences Centre, McMaster Children's Hospital, McMaster University, Maternal Infant Child and Youth Research Network, Children's Hospital Research Institute of Manitoba, University of Manitoba, Data Literacy Research Institute, McGill University, Alberta Children's Hospital Research Institute, Hotchkiss Brain Institute, Université de Montréal, Toronto Rehabilitation Institute, Centre for Addiction and Mental Health, Campbell Family Mental Health Research Institute, Hospital for Sick Children, CHU Sainte-Justine Research Center
Language: English
Subfield: Statistics and Probability
Field: Mathematics
Domain: Physical Sciences
Open Access status: green
OpenAlex ID: W7214756252