Close Relatives in Palliative Home Death – A Study on Living in the Tension Between Responsibility and Dependent on Healthcare Assistance
Year: 2026
Type: preprint
Abstract: Background There exist official guidelines, regulations, and studies concerning the experience of being at home when a patient approaches the end of life. During the phase, the practical and emotional care provided to the patient is predominantly reliant on their relatives. Aim This study aims to explore how relatives perceive their role during the dying process of a family-member with cancer at home. Method A qualitative study design employing phenomenological perspective was utilised. Individual in-depth interviews were conducted with five relatives to collect data. Results Relatives articulated their believe that it is ultimately the patient´s choice to die at home. The informants also highlighted their complete reliance on the support of healthcare professionals during this period. Conclusion The provision of care to the family members through effective information dissemination, communication, and follow-ups is crucial, as these factors enhance the relatives` capacity to cope with the situation during the palliative phase.
Source: Research Square
Institution: Molde University College
Language: English
Field: Medicine
Domain: Health Sciences
Open Access status: green
OpenAlex ID: W7220844827