Get started
Author

P. De Carli

Observed names: P. de Carli, Paola De Carli, Paola De carli, Paola de Carli, de Carli, Paola
ORCID: 0000-0002-2564-1766
Observed ORCID: 0000-0002-2564-1766
OpenAlex ID: A5088179873
Theratyping cystic fibrosis patients to guide elexacaftor/tezacaftor/ivacaftor out-of-label prescription
2023 · Elise Dreano, Pierre Régis Burgel, et al. · European Respiratory Journal · 96
The expanded French compassionate programme for elexacaftor–tezacaftor–ivacaftor use in people with cystic fibrosis without a F508del CFTR variant: a real-world study
2024 · Pierre-Régis Burgel, Isabelle Sermet-Gaudelus, et al. · The Lancet Respiratory Medicine · 67
PDF
Patient perspectives following initiation of elexacaftor-tezacaftor-ivacaftor in people with cystic fibrosis and advanced lung disease
2021 · C. Martin, E. Burnet, et al. · Respiratory Medicine and Research · 57
PDF
Behavioural and sleep issues after initiation of elexacaftor–tezacaftor–ivacaftor in preschool-age children with cystic fibrosis
2024 · I Sermet-Gaudelus, Sihem Benaboud, et al. · The Lancet · 29
PDF
Beyond Trikafta: new models to assess tissue dependent rescue of N1303K-CFTR
2025 · Iwona Pranke, Valeria Capurro, et al. · Frontiers in Pharmacology · 10
PDF
“Il faut continuer à poser des questions” patient reported outcome measures in cystic fibrosis: An anthropological perspective
2021 · Rosa Coucke, Audrey Chansard, et al. · Journal of Cystic Fibrosis · 6
Impact of Elexacaftor-Tezacaftor-Ivacaftor on fungal colonisation in children and adolescents with cystic fibrosis
2026 · Emilie Sitterlé, Anne-Sophie Bonnel, et al. · Journal of Cystic Fibrosis · 1
ePS5.08 “Il faut continuer à poser des questions/We must continue to ask questions.” Patient-reported outcomes in cystic fibrosis: a qualitative study of patients with cystic fibrosis and their caregivers
2020 · K. Hayes, I. Sermet, et al. · Journal of Cystic Fibrosis · 1
PDF
Continuous glucose monitoring to track metabolic changes in youths with cystic fibrosis before and after initiation of elexacaftor/tezacaftor/ivacaftor therapy
2026 · Alfonso Galderisi, Hadija Marchiori, et al. · The Journal of Clinical Endocrinology & Metabolism
Why is family disclosure of genetic risk so difficult? A collaborative analysis of 685 rare-disease patient experiences
2026 · Marion Mathieu, Bérengère Saliba-Serre, et al. · European Journal of Human Genetics
PDF
Expérience Patient des Parcours Mucoviscidose – ACTION :Recherche-action participative pour la mise en oeuvre d'un dispositifd'enquête sur l'expérience patient des parcours de soins, de santé et de viedes personnes atteintes de mucoviscidose
2026 · Pougheon Bertrand, Dominique, Bellis, Gil, et al. · HAL
PDF
724 Uncovering of people with CF and exposome associations through unsupervised multidimensional phenotyping
2024 · M. Leemans, Y. Bousserrhine, et al. · Journal of Cystic Fibrosis
P118 Rare CFTR variants: knowing them to target them more successfully
2024 · R. Chiron, A. Coudrat, et al. · Journal of Cystic Fibrosis
Uncovering cystic fibrosis patient profiles and exposome associations through unsupervised multidimensional phenotyping
2024 · M. Leemans, R. Epaud, et al. · Revue des Maladies Respiratoires
P086 The French clinical research network in cystic fibrosis more than 10 years of positive experience in clinical research for patients
2023 · A. Coudrat, M. Auffret, et al. · Journal of Cystic Fibrosis
PDF
Le projet IGPrare : une recherche collaborative, multidisciplinaire et transversale - Méthodologie de co-construction du questionnaire
2022 · Mathieu, Marion, Malzac, Perrine, et al. · HAL AMU
Maladies Rares : Un domaine favorable aux innovations méthodologiques, Illustration par le projet IGP rare
2021 · Mathieu, Marion, de Montgolfier, Sandrine, et al. · HAL AMU
European Cystic Fibrosis Society Clinical Trials Network (ECFS-CTN): structure and impact since 2009
2020 · Silke Van Koningsbruggen-Rietschel, Damian G. Downey, et al. · European Respiratory Journal
ePS5.01 Patient reported outcome measures used in clinical practice: an ECFS CTN and CF Europe survey
2020 · K. Hayes, E. Lammertyn, et al. · Journal of Cystic Fibrosis
PDF
A Qualitative Study of Patients With Cystic Fibrosis and Their Caregivers
2020 · Hayes, Kate; id_orcid 0000-0001-5561-8893, Sermet-Gaudelus, Isabelle, et al. · Research Portal (Queen's University Belfast)
P252 When doctors go to patients: a patient-based evaluation of the CFQ
2018 · R. Coucke, V. Bontemps, et al. · Journal of Cystic Fibrosis
PDF
296 The French clinical trials network: The National Platform for Clinical Research (NPCR)
2015 · A. Ronayette-Preira, M. Creton, et al. · Journal of Cystic Fibrosis
PDF
Renal veins and caval tumor thrombus extension in patients affected by renal cell carcinoma. MRI evaluation
1995 · Antonello Vidiri, P. De Carli, et al. · Acta urologica italica
Works count: 23
Citation count: 267
H-index: 6
I10-index: 5
Year
Topic
Type