Year: 2026
Type: article
Abstract: Despite vast investments in data collection, generation, and sharing from childhood cancer studies, for example, Gabriella Miller Kids First Research Program, Childhood Cancer Data Initiative, and other efforts, secondary use of data remains a challenge especially for rare diseases. The National Cancer Institute (NCI) Office of Data Sharing (ODS) aimed to promote FAIR (Findable, Accessible, Interoperable, Reusable) data sharing practices to enhance data utility, accelerate discovery, and foster interdisciplinary collaboration. NCI ODS launched its inaugural Data Jamboree focusing on childhood cancer alongside its third Annual Symposium in September 2025. Over 120 participants with diverse backgrounds coalesced into 23 multidisciplinary teams to solve real-world problems in a collaborative setting. The Jamboree built a diverse pool of data users and catalyzed pediatric cancer research, with several project findings being prepared for publication. Moreover, key feedback and recommendations for areas of improvement were provided to NCI in real time. The event highlighted the power of team science, data sharing, use, and reuse to accelerate childhood cancer research and improve diagnostic and therapeutic outcomes.
Source: JCO Clinical Cancer Informatics
DOI: 10.1200/cci-26-00123
Authors: Emily S. Boja, Mousumi Ghosh, Ying Huang, Tung-Shing Mamie Lih, Rawan Shraim, Gregory Wheeler, Diana Thomas, Rakesh Khanna, Stephanie Sandor, Jinghui Zhang, Sapna Oberoi, Nicolas J. Llosa, Aditya Suru, Fernanda Silva Michels, Eric Durbin, Anna Fernandez, Lucy Han, James Galbraith, Yin Lu, Brian Furner, James H. Tanis, Michael Watkins, David Higgins, Gavriel Matt, Xin Zhou, Yang Li, Marcin Cieslik, Jamie Estill, Michael Sierk, Yanling Sun, Weiping Ma, Joseph Flores-Toro, Freddie Pruitt, Subhashini Jagu, Elmer A. Fernández, Daniela Orschanski, Stephanie J. Spielman, Jaclyn Taroni, Trinh Nguyen, Brian Capaldo, Erin Beck, Tanja Davidsen, Johanna Goderre Jones, Minghong Ward, Anne Sturcke, Jennifer M. Torres Del Valle, Sean Hanlon, Danielle Daee, Brandon Wright, Nathaniel Boyd, Heather Basehore, Liang Liu, Ying Hu, Daoud Meerzaman, Huiqing Li, Ying Wu, Gregory H. Reaman, Erin Rudzinski, Jack F. Shern, Brigitte Widemann, Warren Kibbe, Jaime Guidry Auvil
Institutions: National Cancer Institute, Johns Hopkins University, Children's Hospital of Philadelphia, Ollscoil na Gaillimhe – University of Galway, Nationwide Children's Hospital, St. Jude Children's Research Hospital, CancerCare Manitoba, University of Manitoba, North American Association of Central Cancer Registries, University of Kentucky, University of Chicago, Washington University in St. Louis, University of Michigan, Baylor College of Medicine, Icahn School of Medicine at Mount Sinai, Alex's Lemonade Stand Foundation, National Institutes of Health, National Center for Biotechnology Information, University of Puerto Rico System, Wake Forest University Health Sciences, Wake Forest University, National Heart, Lung, and Blood Institute, Frederick National Laboratory for Cancer Research, Indiana University Hospital, Indiana University Indianapolis, Indiana University School of Medicine, Center for Cancer Research, Office of the Director
Language: English
Subfield: Information Systems
Field: Computer Science
Domain: Physical Sciences
Open Access status: green
OpenAlex ID: W7203461312